Beyond Brave
Meet Kyla and Lyle Thomson, co-hosts of Beyond Brave. As parents to Bella Brave, who inspired the world with her courage, they spent over a decade navigating her rare medical challenges. Together, they've channeled their experiences into helping others find resilience and healing. On Beyond Brave, Kyla and Lyle share stories of hope, love, and the lessons they've learned—both through Bella's journey and in their everyday family life. Join them as they honor Bella’s legacy and inspire others to find light even in the darkest moments.
Beyond Brave
#05 - Strength in Answers: Our Daughter’s Autopsy Results.
In this heartfelt episode, we delve into the emotional journey following Bella's passing, focusing primarily on the revelations from her autopsy results. Key points include:
• Clarity from the meeting with Bella's doctors about her lung failure and the extremely rare complication known as organizing pneumonia.
• Sharing the touching experiences of Bella's Ball and its national recognition.
• How we're preparing emotionally for the holidays without Bella, including insights from grief counseling.
• Celebrating traditions and emphasizing the importance of love, connection, and keeping memories alive.
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Welcome to Beyond Brave. I'm Kyla, and here's where we dive into stories of hope, bravery and laughter. Millions followed our journey with my daughter, bella, but now it's time to go beyond the headlines and highlight reels to those raw, real moments I haven't shared anywhere else. So are you ready to go Beyond Brave? Let's dive in. But if you?
Speaker 2:want it to be perfect. You can make it perfect.
Speaker 1:Welcome to Beyond Brave everybody and happy almost holidays. Yeah, Coming up soon.
Speaker 2:December 23rd. Yeah, yeah, exciting, we're getting close.
Speaker 1:We're getting close. You had a little bit of a fun little intro you wanted to try at the beginning this time. A fun little intro you wanted to.
Speaker 2:No, I just thought it'd be. It's fun to acknowledge that. You know this is our fifth episode. Yes, we don't know quite where you know we're going with this, but we're really encouraged with everything so far and it's been a lot of fun, a lot of healing, and we just want to encourage everyone to to make sure to give us five stars on Spotify or Apple and leave comments. I like responding to all the comments on those platforms yeah, more comments and subscribe. Yeah, so you can yeah.
Speaker 2:Five stars and subscribe. It's a little Christmas gift to us from from you guys, anyways, where if you're enjoying the show?
Speaker 1:Yeah, if you already did that, thank you, yeah and uh, welcome. Welcome to beyond brave. We got a lot to chat today. Got my teacher notes in the electronic version this time. Last time I was, you know, uh looked down upon for my three pages here. So all you tree lovers out there, um the tree farmer, that's the tree farmer sitting across from me.
Speaker 2:As long as that ipad is charged up, we should be okay yep, it's charged.
Speaker 1:We got 48. Bring it on. Should do okay thank you all, prepare okay uh, first of all I want to do a quick, another quick thank you, besides a huge thank you to our listeners. Um, we're also probably wondering do you want to look up quick where we are on the charts? I kind of want to keep this going, see how long we can keep this going for.
Speaker 2:I don't think I have time to scroll down there, right in the heart, right in the heart.
Speaker 1:Yeah, okay. So when we the first week of our podcast we were top 20 on Spotify in Canada, yeah. Then the next week we had a little, you know, downwards, you know a little trip into 38. I don't think you need to be worrying about it, I just think it's funny to see, like, how we haven't voted, like you know, over the court, like it'd be. It's cool to start I think we've.
Speaker 2:Obviously you're going to have that quick bump and we've leveled off and uh well, let's just see encouraging to see everyone you know responding well to all the comments well, if we like, would it reflect the popularity of certain episodes?
Speaker 1:do you think like? It's like oh, episode one was like yeah, and then it's like episode four and then episode five. It's gonna wrap back up like you like my sound effects, it's pretty.
Speaker 2:Someone might.
Speaker 1:I hope they do. I'm just going to take a quick see here. How do I find it again? You go to podcasts on Spotify and you go. Where do I go?
Speaker 2:Oh, I can't tell you whether playing around with it for five minutes.
Speaker 1:No, I found it. Oh yeah, You're. No, you're top 24. No, I don't want to know my wrapped right now. I forget. How do? How do I find where I am on the numbers chart?
Speaker 2:do you remember, anyways, things we've been up to lately, we had such a okay, what is it?
Speaker 1:okay, top podcast drum roll. She's scrolling. Uh, we've gone past 38. I'm starting to cry because I've gone past 60. Now I'm in a deep depression. I'm still going to cry. Now I might be on the floor wailing because I'm scrolling past 130.
Speaker 2:What did I say about scrolling? Wait, now I'm going. So this past weekend we had quite a fun activity.
Speaker 1:Oh, that wasn't that good, yeah, yeah, well, we could talk about some fun things that we did, yeah, yes, okay, we need to mention bella's ball, which got national news, by the way, which is so cool, so ctv covered it and it was on, which was like that was just awesome. Ctv is awesome.
Speaker 2:They've always I don't know where they heard, but that was cool, it was fun. It was a really nice place like that. Uh, uh, awesome ctv is awesome, they've always. I don't know where they heard, but that was cool, it was fun. It was a really nice place like that. Uh, uh, kind of an auditorium in saskatoon. Yeah, it was like a theater. Well, not a theater, it's like a conference room at the theater, it's a real beautiful room how many disney characters were there?
Speaker 1:oh my gosh, I think I counted 12. Yeah, who was there? Do we remember? Okay, rapunzel, elsa, anna, ariel. Uh, merida batman, spider-man, ghost spider. Uh, flynn rider, cinderella, did I get them all? Was that 10?
Speaker 2:and there's like three different spider-man no, it was spider-Man and Ghostbiter. Oh, I didn't know.
Speaker 1:Okay, yeah.
Speaker 2:There was bouncy castles. There's a lot of a lot of singing and a lot of dancing. Bella's ball.
Speaker 1:Yes, a little bit of background on this. My friend, jen Draper, from Saskatoon, had run a family program in Saskatoon for medical families and in a way to support them and she, of course, is a very close friend of mine and knows Bella's story, of course, and she instantly thought of creating this ball in honor of Bella, to honor her for her 11th birthday, her first birthday in heaven, and she made it exactly what we needed or would want it to be, and what Bella of course wanted to be uh, absolutely magical, beautiful, and not only that, supporting other medical families. So portion of proceeds went to Ronald McDonald House, our local one in Saskatchewan and all those gifts that were given to the children's hospital in Saskatoon yeah, it was amazing.
Speaker 2:Yeah, I think there's probably like 70 people there or something. I was surprised by the turnout. I didn't know what quite to expect. It was the snowiest coldest day.
Speaker 1:Oh yeah, so it was rough weather, so I'm really thankful for the people that actually made it okay.
Speaker 2:Yeah, and we were able to get a little bit of Christmas shopping done while we're there, because we're all in full in getting ready for Christmas.
Speaker 1:We're going to touch on that a little bit.
Speaker 2:Like now.
Speaker 1:Right now. Yes, that was the number one.
Speaker 2:You know I try to work in a killer segue and you're just like.
Speaker 1:What are you doing? Why don't we?
Speaker 2:It's literally the second thing out there.
Speaker 1:Yeah, that was a great segue and I just blew it.
Speaker 2:Why don't you talk about it?
Speaker 1:I'm all thrown off because I didn't find myself on the chart today. I'm flustered, just a little.
Speaker 2:You know what's gonna really help our uh, our rankings?
Speaker 1:stomping all over my segues I thought you were gonna say subscribe, like yeah no, I'm not much of a pitch man I know, don't do that, it's annoying, uh, okay, so uh, we can ax that segment next time how have we prepared for christmas?
Speaker 1:how do we plan? See, my, my segue was just a wrap, that was. I'm so sorry about that. How do we plan on navigating christmas this year without bella? Uh, well, we I was thinking about this today because I wanted to bring it up and we- thought about it like a month ago like five months the last thing I really want to be doing is spending time in here.
Speaker 2:I think I kind of just want to make a big change.
Speaker 1:But that was number one, I think, if we want to kind of give insight into where people are, uh, emotionally, if they are someone who is grieving over the holidays or through the holidays or close to the holidays, doesn't matter. If you're in any grief season of your life. We're finding it very hard to think about being at home without our loved one, without Bella, and so immediately we're just like, nope, we don't want to be home. No, so we started to prepare for comfortable Christmas we could spend away from home and we like chewed on the idea of maybe just going somewhere as the three of us, yeah, and then we kind of leaned more into okay, I thought that might be a little lonely too.
Speaker 1:Yeah, and so we leaned more into okay, what, what family?
Speaker 2:Go away and see our family, so we'll go in and see my sisters, which is nice because she has three boys. So Waylon will be totally distracted with trying to keep up with them. Cousin's Christmas, or vice three boys. So Waylon will be totally distracted with trying to keep up with them cousins Christmas, or vice versa. They rock playing some hockey.
Speaker 1:Yeah, my balls fights and my favorite Christmases were with all my cousins yeah, yeah, and so it like really meant a lot when my parents would travel to to get me to see all my cousins and aunties and uncles, and those were the best. Yeah, I mean I love, don't I? I loved when it was just me my mom, my dad, my sister but Christmas with cousins was better.
Speaker 2:Yeah, for sure.
Speaker 1:It's just way more fun because there's so many of us. Better, yeah, it's better. Sorry dad, sorry mom, sorry Becky. Yeah, I like my cousin Christmas, so I think that'll be, I think that'll be good for us, I think it'll be easier for Waylon and we just really kind of want to avoid that lonely feeling at home without Bella.
Speaker 2:Keep distracted.
Speaker 1:Keep distracted and comfortable.
Speaker 2:There's going to be hard times. I don't think Christmas morning will be an easy morning.
Speaker 1:No, but I just feel like no.
Speaker 2:Keep it together.
Speaker 1:I don't want this to sound like not cliche, but like I don't know weird, but it's like no mornings have been easy no sure you know, and it's just like you just when you add that Christmas title on top, it just feels like it's gonna be worse uh, it was like it's been hard the whole time.
Speaker 2:I mean, even getting ready for Christmas and setting up the tree and decorating was more difficult than I expected. I'm like, well, just keep it together, it's heavy, it's heavy. And you're like oh, you put a couple of decorations on the tree and it brings up all kinds of memories.
Speaker 1:The physical toll grief can bring in. Situations like that is a lot Like if I could put that into perspective just there's just thinking about putting up the tree without your loved one, and then there's action of actually doing it without your loved one, and then there's it being there and and the season and everything around it, and it's to me it's like a workout, because your body is just exhausted with emotion because it's so heavy and it brings up so memories and then it also brings up what they're missing, and then that hits you and it just feels like you know, think about setting up the tree and you want to take a nap on the couch. Set up the tree, cry, you hold it together for your six-year-old and then you want to take another nap on the couch. It's like this, just these way physical waves. For me, um, I found it's kind of like the experience of what that's been like yeah, it was kind of like all day today yeah and I yeah definitely like we had a big day today with uh.
Speaker 2:I guess first thing we started off with was our grief counseling sessions and uh, I think we can go into that a little bit, but then we had well, there's one chat with our doctor, but okay, sorry there was one more little thing I wanted to mention about our our christmas, yeah, planning.
Speaker 1:Uh, I'd been saving many mementos in a little christmas basket in preparation for setting up the tree, because I knew it would be hard, but I wanted to save them and I wanted them to be the special part of the tree for this year without Bella. And so at the top of our tree I have we don't have like a traditional star like that we usually put up there, or this big angel.
Speaker 2:We switched it out this year.
Speaker 1:We switched it out this year and I have a pair of angel wings beside Bella's handprint from july. So she's our angel at the top of our tree I think that's appropriate.
Speaker 2:Yeah, it's nice to know you can have you know your own personal angel up there.
Speaker 1:Yeah, yeah, and so she would love that she would definitely love that and, um, it was like it's not all doom and gloom and sad. I mean, it's um. Basically what I'm describing is the feelings that you kind of choke down that are there, but you you want to choke them down in the moment because there's still so much joy in Waylon. Waylon was so excited when I started bringing in the tubs of Christmas decorations and he was just like, yeah, like vibrating, and I want that for him.
Speaker 2:I don't want him missing a second of that because I am grieving yeah, you absolutely nailed it with his um reactions and keeping him at the top of your mind really do snap you out of spiraling you know into a little corner and I think that's healthy. I mean he goes to bed and we can take our time that way.
Speaker 2:But uh, you know he keeps kind of like your guiding light a little bit that way yeah and that kind of brings us to like today at our therapy and a few things that you want to chat about yeah, I always like throwing in here because I think it's important in our discussions you know to be.
Speaker 1:We like being talking in real time and supporting others that maybe go through similar experiences or just giving insight into our story, because so many people are aware and want to know how we are. And, like always, you know it's it's easier to talk to you like I'm very fortunate to have my husband to go through all this with and, uh, you know to talk about it on this pod as that's being therapeutic, and then we can share it with everyone and be like, oh, you're like, we talked about that on the pod, like take a listen and hope it helps. We had a great timing of our grief therapy session this morning, as we knew. At 12 o'clock at noon we would be speaking with Bella's medical team from SickKids about her autopsy results and just getting and getting closure with that and getting understanding with that, which we did, uh. But to start our day with a grief counseling session was really good. Uh, we uh on the drive. There was kind of funny why I had. Do you remember I had these?
Speaker 2:oh, yeah because so we from our last grief counseling you said I wish I could have got to my questions. I'm like okay yeah yeah, okay. And so I say on the way and okay, kyla, make sure you start with your questions.
Speaker 1:And well, I didn't really know the content of the questions and yeah apparently there's a little bit of me in there yeah, without giving a beat, I whip out my notebook and I'm like question number one. And then I was like, oh yeah, put that away, put that away I was like well, I don't want to forget my questions.
Speaker 2:Well, I think we had to get down to the list, but maybe question four. Well, we can't start off that hot. I mean, give me a warm me up a little bit.
Speaker 1:We were starting in there.
Speaker 2:I was starting off with uh um, I think one of the takeaways from therapy today was yeah, what I say you know not necessarily. Okay, I like to know what we're up to for the day, but maybe I did kind of start with not what are you doing today, but how are you doing?
Speaker 1:today. Right, definitely, I wrote down the helpful advice that we received today and that is it. It in a summary. He also had said, which I found very easy to remember, it was collaborate versus compromise, that you compromise too much, that sort of thing where it's like, if you look at it as collaborating, and what we realized through my question for our therapist was, was that, you know, men and women are very different in their grief and men tend to be reactive, women tend to be more doers and planners and and uh, men tend to be more task oriented versus emotional and relational, which I completely agree with because of what lyle just said.
Speaker 2:it was very before we started banging off all these tasks, maybe I should check, in say okay how are?
Speaker 1:you, brother, whatever you're doing and it was funny because he, you know, he helped us figure out like, okay, well, what time of day can you guys sit down and and check in with each other? And it's like he's like, do you like have, like, what time do you start your day? And we're like, oh, we start at six. We get Waylon off and off, you know, school by eight on the bus, and then we sit down and have a coffee. And he's like, okay, well, that's the perfect time. So it's kind of like we're I thought that's what we were doing, yeah, and we were like, oh, maybe what?
Speaker 1:And then so it's like we thought we were doing that, but then what I was having an issue with was, well, I feel like we sit down, yes, we have our coffee, but then it's like what are you doing today? What are you getting done? How are you being useful? And I feel like the conversations were making me feel more like that versus how, like you, how are you doing, versus what are you doing today? And it's, you know, really like there's a reason why people need leaves from work, right, it's that you, it's hard to function when you feel like a workhorse and you, you, your body is telling you, no, you're still grieving, but your mind is like, oh no, we can do some things. We can do, like make a list, let's check the things off the list, and then your body's like wait a minute, no, we're, we're still in a like, let's just sit down and grieve moment.
Speaker 2:Yeah, I really find that.
Speaker 1:Yeah, yeah. So our, our tip from today was collaborate versus compromise, ask how you are versus what you are doing how you are, what you are. It didn't work out very well. We already nailed it twice versus what you're doing that was my line.
Speaker 2:Don't try to don't, don't mess it.
Speaker 1:No, yeah that was your line. It was such a good summary because, after our therapist has said, you try to focus on being more collaborative versus compromising.
Speaker 2:Yeah.
Speaker 1:Look at things.
Speaker 2:Let's see if I can execute, yeah.
Speaker 1:And then you, then you nailed it and you're like that's like you know, like I just was really excited that you were like, oh, you got it. Like the light bulb went off and you got it. I was like, okay, I'm looking forward to that there was, that that was helpful today.
Speaker 2:And then there was really the preparation for our call with our Toronto doctors team. I had just this gut wrenching nervousness about it and I didn't really know why. It didn't make any logical. I mean, there's not going to be any news that changes anything for us. Like I think it was almost a bit of PTSD from 10 years of just waiting for those calls from the doctor. You'll be in Toronto. I'm in Swift Current and it's like, oh, we have a meeting this day and for a week all I'm doing is dreading what news they're going to be bringing up in that meeting. Yeah, because I've very rarely good news that we're getting, and that was 10 years of that, and so I think there was a lot of that coming up. But I just couldn't. I'm, I told you I don't know why this meeting is making me sick my stomach, but I just really can't get past it and I know it doesn't make any sense, but Well, it's, it's like you just said it, it said it, he said.
Speaker 1:Our therapist is like you're, don't forget, you both are going to uh process this differently and, like you had just said, it has been years, 10 years of you in that mode of waiting for the call. Oh, what bad news is coming. Wait a week. What bad news is coming? Wait a couple weeks. You know, and you're always in that mode, whereas I was completely immersed in it.
Speaker 2:And aware.
Speaker 1:Aware in the know daily discussions with these medical professionals as soon as I wake up till I go to bed, and it's kind of like when yeah, or even when you would phone when you're away in hospital.
Speaker 2:Yeah, I'm like well, why?
Speaker 1:is she phoning You're?
Speaker 2:just going to text me and like, okay, if it's a phone call, it's phone calls, just kind of like when you're your parents phone you, yeah, and it's like, why is dad? No, it's always dad phones. Dad phones is like, oh god, if mom's not calling, dad has bad news mom can't give me it.
Speaker 1:Yeah, yeah, yeah, why is?
Speaker 2:dad, but I never talked to dad yeah, too upset yeah, which and it's rarely the case I'm like with that why? Why are you? Why are you calling me right now? I don't just just to talk, okay. Well, can you put mom on? Yeah?
Speaker 1:I need to be comfortable now. Yeah, yeah, no, I get that, I get that for sure, yeah so there's.
Speaker 2:There's a little bit of that when you would phone and just those phone calls sometimes, when you know I guess maybe there's a little bit of uh instinct in your stomach when you know that something. Maybe there's a little bit of uh instinct in your stomach when you know that something, that something's around the corner, but in this case I don't necessarily think that you know. The meeting that we had, I came out of it um good, the meeting was great I think I mean it's heavy stuff.
Speaker 1:They're reviewing bells the clarity was there the meeting was there was no unknowns, there was no like. Maybe we're not sure, it was clarity and that's I was.
Speaker 2:That's what I needed did we even talk about what I mean? It was for Bella's autopsy results?
Speaker 1:really, yeah, so it is. It's been five months, and I wanted to preface this by saying that Bella, if you know her story, you know her rarities and and the combination of rarities with her conditions, and so that involves a lot of specialty teams, and so at Sick Kids in Toronto, there is the autopsy that was done, and then the pathologist that has to review it, and and if you know much about pathology, they take a lot of time with their reports. They need to. It's literally like looking at things under a microscope and reporting on it, and with Bella's rarities it just would have taken longer. So it's very. It's not that there was anything wrong, it's just this is a typical amount of time, uh, and then after that, then the multiple teams needed to meet, so the pathologist, with the icu team, yeah, with the gi between oh yeah, and then to get all these professionals in a meeting not just once, but multiple times.
Speaker 1:so pathology icu team, her gastroenterology gi team, her transplant team team and her respirology team All of them had multiple meetings before the transplant team would be able to summarize their findings and call us today. And so I just wanted to say, like it's been a five-month wait, it's been five months of you anticipating that phone call and having to.
Speaker 2:you know, of course your stomach was in knots because it's been so long but it it turned out, you know it gets I I was mostly nervous because it also it's like you're opening up an old wound. Yeah, um, that wound is certainly not healed. But it's like, okay, the dust is starting to settle. We're just opening this up again and it's like, okay, the dust is starting to settle. We're just opening this up again and it's just a hard thing to process. But I mean you can provide the update. You have a pretty good understanding of it and I think the clarity is helpful.
Speaker 1:Yeah, and I was also. I'm feeling much more relieved because of the clarity, because I mean we we had our 14 members on the chat her ICU main doctor and uh yeah, so I mean doctor, and they were.
Speaker 1:They're always amazing to talk to you. They always bring comfort and understanding and clarity to every conversation, so I feel relief from that. I want to be able to explain this in a way that people understand. I will try not to use too much medical jargon and explain it in layman's terms if I need to, but jump in at any time I would never interrupt you.
Speaker 1:Oh boy, you're allowed because you were there, okay. So here's the thing you, I had so many medical conversations without you and it's so hard to keep it in my brain and organized and I need you for that and I have needed you for that, and so it's always helpful to have you as like that, backup recorder for the medical conversations we've had with doctors.
Speaker 2:Apart from my chicken scratches that I have here because you used like I think they have these recorders, probably too late, too late okay, so what we found out?
Speaker 1:so essentially, if I get back up a little bit, bella had passed away she she had passed away in july due to lung failure, and what we didn't understand at the time was, number one, how it happened so fast, and number two, was it even related to her bowel transplant she had last august?
Speaker 2:and her bone transplant from and her bone marrow transplant from nine years ago.
Speaker 1:Yeah, and there's a lot of questions, and because it, because everything did go so good. She had a successful bone marrow transplant. She had a very, very successful bowel transplant. She lived an amazing, was it? Nine months after this bone marrow transplant? They were amazing gave her the best nine months of her life and then lung failure out of nowhere. Why? We need to know why, and what they had found was organizing pneumonia yeah is the title.
Speaker 1:That's the head title and how we get to organizing pneumonia being the cause. Um is a little road down very extremely in in our doctors, and I quote, extremely, extremely, very rare complication yeah, it's more, uh, common with bone marrow transplant patient.
Speaker 2:Uh, they can close to it and close to it only within a year of probably receiving a bone marrow transplant patient. Uh, they can close to it and close to it only within a year of probably receiving a bone marrow transplant. Would they see? Would they be even looking at this? Fellow was 10 years out yeah, but what they believe is that with that bowel transplant, you now have three different immune systems kind of trying to work together.
Speaker 2:You have an original one that's still a little bit around. Then the bone transplant, the donor Bone marrow donor. Yeah, that immune system.
Speaker 1:And then the bowel donor immune system and also to keep in context. This is the only pediatric patient that has ever had a bone marrow transplant prior to a solid organ transplant. Her team has never done this before, they'd never seen this before and they had told us in our meeting today they will most likely not see this again in their lifetime, because that is how rare this situation is circumstances are.
Speaker 1:They're always going to be unusual, especially at children's hospitals but I want to say that because I, bella and I are, we are advocates for solid organ transplants, organ and tissue transplants and I don't want this extremely, very rare complication to scare away anybody from.
Speaker 2:Yeah, that's a really good point. Yeah, from transplants I'll touch on that in a little bit. It brings me up something, but Okay, sorry, go ahead.
Speaker 1:Okay, so organizing pneumonia, and so what I wrote down and how we got there is when you are you, you're starting on the background of a very complicated immune system which is Bellas. You bring in a bowel transplant. With any bowel transplant there is a virus called CMV and they know this and they monitor it and it is very common and they deal with it and it goes away and it's common in most populations like we have.
Speaker 1:Yes, yeah, like we currently have it. You probably have it like it's, it's there and it, and when you have a bowel transplant, particularly it is there and they know it's going to be there and they prepare for it and they prepare to monitor it and it can be.
Speaker 2:It can be an issue. It can be an issue and they know it's going to be there and they prepare for it and they prepare to monitor it and it can be, it can be an issue. It can be an issue and they've antiviral drugs for it. And right after her bowel transplant it had spiked, but we were able to control it.
Speaker 1:It was controlled and monitored.
Speaker 2:And then apparent. I guess maybe nine months down the road after she received her bowel transplant, we did start noticing some some lung issues, lung issues, respiratory, where she would get dizzy. Uh, she wasn't getting enough oxygen to the brain. Probably because she didn't and and she would have, we'd have to bring her in and she'd get um oxygen and you kind of, yeah, we would kind of recover from it. But, yeah, I think we would administer the antiviral drugs. They would suppress that, uh, that CMV infection. But at the same time, um, there was a lot of inflammation occurring within her lungs. That would be that they would need to control. If, once this inflammation occurs, they need to control that with steroids, the problem is with those steroids that the they can exacerbate the cmv issue and so you kind of start to spiral out of control with okay, do we administer the antibiotics, do we administer the?
Speaker 1:it's a very, very fine balance as they monitor this, this virus. That is common, however, with bella, they believe, with organizing pneumonia on the background of a very complicated immune system. The inflammation that was caused and the cells from the immune system causing the damage to the lungs is called these chronic changes, is called fibrosis, which is scar tissue, and this extremely, extremely, very rare complication is and was most likely triggered by the CMV. And even if you rid the virus, which they're actively monitoring and lowering and looking at once, this cascade of inflammation starts and takes over. There is cases that you just can't control. So it's like it was triggered, it started this chronic change with fibrosis and scar tissue, the inflammation causing the fibrosis.
Speaker 1:And at that point it was irreversible.
Speaker 2:Yeah, I mean they took x-rays through um after they had been able to intubate her. You know, in the last week of her life they they could see through imaging that there is a ton of fibrosis in her lungs and eventually it was just irreversible damage that we could it it. It was very acute, so it wasn't something that you know Bella struggled with for for months or anything like that. So that was a relief for them to one months or anything like that. So that was a relief for them to one. I'm glad you asked that question and, yeah, two it that the answer was good. Is that? No, she, she didn't struggle with this for a long time. It was.
Speaker 1:Can I elaborate on that? Yeah, I asked. Yeah, I just didn't want if you had something else, I didn't want to interrupt. I asked the question, uh, as her transplant doctor knows her. Dr Bitzer knows her very, very, very, very well and he had said he had thought about what I was about to ask already, because him and I we, of course I know Bella, he knows her just as well. What I had asked was I said she has such a high pain tolerance she will push through pain.
Speaker 1:I've seen her push through pain to do something she loves to keep the opportunities coming to keep the opportunities coming to do something, she, like she will push pain aside and I have to, or I would have to, check in with her and be like, look honey, like if this is too hard it is okay, and she'd be like nope, doing it.
Speaker 2:It was even, you know, going to physio, you know, two weeks before this, when she was struggling and she'd know I'm going to physio. I want to I think there's a lot of she would do that when I'm there. Oh, a lot of she would like I need to show dad that I can swing the bat and play baseball and hey, yeah, she wanted to do that, and made her feel good.
Speaker 1:She, she wanted to do those things. She didn't want to sit in a hospital bed, she wanted to get up, walk around, move, play baseball, even. I mean even thinking back to so many things when you know, before we go to gala events and her bowel disease would cause her to be like vomiting two or three times and she'd be like no, this is not going to keep me in this hotel room, we are going to the party and I'm like honey, if you need to. You know that's just the way she was, and so I had asked them.
Speaker 1:I had said is there any chance that this was affecting her? And we didn't see it because she had such a high pay, tolerance, because she would push through to do things she loved. Could she have been telling me she was fine when she really wasn't? I asked that question and he's like no, this was acute, it was quick. And the way we were monitoring this common virus, the way we were diligent what did he say? Diligent parents with her medical care, he's like there was nothing to see sooner ahead. Right, and he confirmed that for us and that really meant a lot yeah.
Speaker 2:I think I brought Kleenex for you. It's hard to understand, like understand. Maybe someone's listening in, like how do you, how do you take this news?
Speaker 2:and yeah it was such a relief for them to say something like organizing pneumonia. Like how many times did we get an explanation? Yeah, very, very few. And so it was yeah, it I. What I was nervous for didn't happen. We were able to get an answer. Yeah, but we also, I, I was, I was worried about them saying, oh, it was this and it was highly treatable. Yeah, like, yeah, and it was highly treatable, yeah, like, yeah. But then again there's always that those oh we, if if only we did this or only did that. That. That happens in death many times and and I mean we would get over it, that that's yeah. But the other, the other part of it was okay. Well, she needed that bowel transplant. And you start to think what if? What if she didn't get the bowel transplant. But I know we, there's these iv lines called central lines that are basically permanent ones that go go into permanent iv lines yeah, permanent iv lines, and she had her.
Speaker 2:She had basically won her whole most of her life at on and off her in her life and through that, with her tiny body, her main arteries were basically closed, scarred and closed off, and so they they weren't able to get any more, though, so the last permanent IV that she was totally able to have, we it actually started up a one week after her bowel transplant, which was remarkable because if we would have lost it before she would have got the bowel transplant and things would have been horrifically worse
Speaker 1:that's horrific yeah she was surviving off of ivs and she had no iv access.
Speaker 2:That's the easiest way I can put it and so, like I had to make it clear to the doctors that you know it, we had these conversations going in that this is a highly risky yeah, or organ transplant, but it's our only option and, with the timing of when that central line scarred over one week after she got the bowel transplant, so now her bowels are able to take liquids in and actually use them she didn't need hydration through an IV line. Yeah, we didn't need that central line anymore.
Speaker 1:Some remarkably she was free of that.
Speaker 2:She was free of it and for nine months we had the best.
Speaker 1:She dreamed of?
Speaker 2:Yeah, yeah, we had the best nine months of our lives, for sure. Yeah, and she did of. We had the best nine months of our lives, for sure, and she did too. So even though, even though it ended earlier than we had hoped, it was better than we could have ever hoped.
Speaker 1:Yes.
Speaker 2:Yeah.
Speaker 1:I, I I also prepared myself for this conversation.
Speaker 2:No, I didn't. Oh, you mean.
Speaker 1:I mean with the doctors.
Speaker 2:Yeah, I prepared. My, I didn't prepare for this one oh what what's the third cry fest for the day.
Speaker 1:That's okay. I had I cried through our entire one hour therapy session. That's when my body decides to release everything. And so I did that earlier today and I think I'm all all out. But I went into our discussion with our doctors today kind of grasping, preparing myself that if we were to get really, really, really difficult news that would be really, really hard to live with. I kept telling myself. If there's one thing I need from this conversation is to at least know that they have the knowledge or the know-how to help another kid or prevent this for another kid. I was like at the very least they can do that, they can give me that right, no matter what. And so, thankfully, we got the clarity in in a way that was easier to take. Right, we understand it wasn't anything we could have prevented. We know why it happened and we know, we understand it. Now we understand with that clarity.
Speaker 1:I still asked, though. I said her bowel transplant was so perfect. Her, you know, and and dr vitzer had said when the autopsy was done they looked like absolutely amazing, normal, functioning, great bowels. They there wasn't a hiccup with her new bowels, they did their job and they did it amazingly well. And I said well then, how come we couldn't then? Because she had them for such a short time, like nine months, it's just a short time. I'm like, why couldn't they then transplant them again for another waiting child? And he had said a couple of things, but I think even just being handled.
Speaker 1:It's the trauma of the surgery and and they, they when they plan a transplant they want to optimize. They have to optimize and it has to be the optimal bowel from the original.
Speaker 2:And that's good.
Speaker 1:The original donor the person's bowels. Original owner. I wanted to say owner, that's just uh. So number one it's too much trauma on the organ to go from one surgery to another major surgery, so they can't do it that way because there's so many background things with her blood and well, that's just the thing like what are you transferring right?
Speaker 2:what are you?
Speaker 1:doing. Well, I had said, you know, like with a kid who doesn't have immune issues, with a kid who has a working immune system, you know that risk would be less. So if the bowels are still good, why couldn't you just then quickly transplant it to another one? But it's. It's. The main reason is there's too much trauma and they would risk it failing for the transplant recipient. If it was for a lack of a better word, second hand, triple second second hand, like what would you even call?
Speaker 2:you know what we? Should do move on no, we should get the doctor on here oh, stop talking.
Speaker 1:You're not, you're butchering this conversation, but I just I wanted people to, that's true, and we did. We, at the end of our conversation, uh, with our doctors, we had said like hey you would be great to get on started a podcast with you guys because that's been my like my number one guest I've been wanted to invite, which I will get to. I gotta learn how to do that professionally and just, but we kind of did it informally. Today that's probably the best way and he said yes, absolutely.
Speaker 1:So prepare yourselves. Uh, people of the world, we're gonna get some of bella's doctors on here yeah, you get some actually accurate information yeah, some, and I love that he's gonna insist.
Speaker 2:Now they heard our breakdown of what it what it was he'll call me tomorrow, so I heard no, uh, yeah yeah, like I said, I'm I'm, I'm relieved, I'm happy to get the information we got and, yeah, um, it's just one more piece of the puzzle that I think will help us.
Speaker 1:Yes, I had written down, before we go on to our next topic, I had written down what I wanted to say. That I thought was a really good way to sum it up. I prepared myself, and I thought about it this way, that there is more healing in having this conversation with our, with her doctors today about her autopsy there was. I knew I needed to tell myself there's more healing to have this conversation now than avoiding it for a longer time.
Speaker 2:I like to avoid things. Yeah, that makes sense. That makes sense.
Speaker 1:Yeah, definitely, and yeah, I hope we were able to explain that without too much medical jargon. But ultimately, you know, our little girl fought a big fight, uh, against the organizing pneumonia as best she could.
Speaker 2:Uh, it was irreversible and um I think further down the road, when we're ready, we'll. We'll want to talk about, you know, that last week that we had with her, yeah, those final days. It's not something I'm really ready we're not talking about yet. We're not quite ready, but but being able to have even this conversation right now is one helpful too, and showing that yeah I. I wouldn't have been able to do this even a month ago.
Speaker 1:So, yeah, I think, I think it's a good thing there's gonna be a lot of hard things just going through the, the memories of the final, her final week and weeks. Um, I think we need a bit more time before we feel strong enough to it'd be a messy podcast it would be messy and we don't want messy for you guys. We want you know, we want accurate and heartfelt and understanding and helpful and story times. On that note we wanted to leave on a happier note on that note, we'll go to the other note.
Speaker 1:We're going to a different note. Like my segues, I'm getting better. Okay, we wanted to leave on a happier note. Now this is how this conversation went about. Wild said let's end on a happier note. Now this is how this conversation went about. Wild said let's end on a happy note. I said, great, let's talk about what would be helpful for people when they travel over the holidays. And you said, yeah, that could work.
Speaker 2:And I went on chat GBT and found some pretty funny Ten really boring tips. Make sure you pack a shovel.
Speaker 1:Oh wow, no make sure it wasn't boring, okay, well then tell me, let's hear it out. Okay, okay, same. This is what I came up with. What's in Kyla's car?
Speaker 2:What's in Kyla's car? Okay, that's my car. That is a great question If you ever went in.
Speaker 1:Because you keep in the car. I'm the opposite. I'd rather clean my car, that center console.
Speaker 2:You hold me hostage you hold me hostage in this house, keep it clean you.
Speaker 1:I don't have time for my car anymore.
Speaker 2:You hold me hostage down in those, those bodges.
Speaker 1:So there we go no, okay, so mindful packing for winter conditions, and I thought this would be helpful for people when this episode drops and then you're like they'll already be in the car well, yeah, I think it's on the 23rd.
Speaker 2:Who everyone's traveling on the 23rd, 22nd?
Speaker 1:in case they are just a couple, let me say a couple. Let's review the things they forgot to pack in their car, probably and then we're gonna get to some even funnier things, because then I was like, how about I put a question box on my instagram and we talk about, uh, our favorite and most hated Christmas traditions? That was me. We're gonna. We're gonna call this the uh Kyla sound effects.
Speaker 2:I'm just wondering where you're gonna go go with all this, because okay, well, okay, well.
Speaker 1:First back to what's in Kyla's car.
Speaker 2:Okay sometimes the most entertaining things is just to sit back and let kyle not say anything.
Speaker 1:Let's see what she says next, what did I ask you to do before we came on the spot? We had to sit down and I said yeah, you're reviewing, like grading my podcasting skills I said don't stick. I wish we could just like focus in on lyle's facial expressions when I'm talking. I just shouldn't have contact.
Speaker 2:We are on YouTube and I got video on YouTube now so you can. Yes, good, okay, I'm totally confident that I will come across just fine.
Speaker 1:When I look into your eyes while I'm talking, it's like I read every little flinch and every furrow and I'm just like I don't know, like oh and I'm just like I don't know Like oh, does he mean stop talking? Does he mean keep talking? Does it mean like, why are you talking? So it makes me lose track. So I told you.
Speaker 2:I'm just so excited to see where you go. Why is never asked? I don't know. Why is she? I don't. I don't ask that anymore. All right, where?
Speaker 1:where? Don't ask that anymore, all right, where? Where are you going with this? Let's do, okay. I well, I just wanted to go to that, and then I wanted to go to the more fun things for my instagram question box, but I thought these were funny.
Speaker 2:I think we should talk more about what we're going to talk about.
Speaker 1:This is really good stuff okay, I'm jumping in snacks, because hangry kids are worse than black ice. Oh, do you like it? No, stop twitching on purpose a shovel for when the snow says not today, kyla, these are things you should have in your car blankets you wrote these down yeah, not just for warmth, but also for fort building emergencies you want a blanket for in the car first date yes, you never know what, if you get trapped for four hours and cca can't get you, is it cca?
Speaker 1:no, caa, caa for canadians yeah yeah, by the way, we're canadians, so this is for people traveling in winter. If you weren't, if you were like, why is this crazy lady telling me to pack?
Speaker 2:a shovel without going to California. Yeah, they can go get bent, they don't have to stand us.
Speaker 1:Yeah, we're talking about like driving in minus 30 degrees Celsius. What is that in Fahrenheit for?
Speaker 2:them, it's close to minus 30.
Speaker 1:No, minus 30 here is like really cold. But what is it in the States? What are they referred to at us?
Speaker 2:um, probably like minus 25 no, celsius is like I know the word you're looking for fahrenheit I said it already.
Speaker 1:I was like what is minus 30 in fahrenheit?
Speaker 2:it's really. It gets relatively close at that point, like minus 40 is the same, what yeah? Oh, I didn't know this, I know you didn't any lessons in that. Nah, it's okay you don't need to worry about uh, okay, one more.
Speaker 1:That's kind of funny, oh funny, but purposeful. A bag of kitty litter, not cats, no cats required, just sprinkle for traction and watch your tires claw their way out there's no way.
Speaker 2:That's true yes, if.
Speaker 1:If you get in ice, kitty litter works as like sand.
Speaker 2:Oh yeah, isn't it like bentonite clay? I don't know, it'd be almost slipperier.
Speaker 1:No.
Speaker 2:Yeah, I think so, because it's like clay, and when clay's wet it turns really, really slippery.
Speaker 1:So maybe this is a good thing. We're talking about it, right, this is, yeah, all right, all right. Should we switch? What did we learn there? Uh, okay, well, what I wanted to say emergency candles and a lighter, because nothing says holiday spirit like it makes shift survival. Um, I don't know that word. How do you? You say that word, seance.
Speaker 2:So what's your favorite holiday?
Speaker 1:tradition. All right, let me get this.
Speaker 2:I think ours is, mine is probably.
Speaker 1:Your favorite holiday tradition.
Speaker 2:It's kind of boring, but watching Home Alone is just like number one. I don't know we haven't watched it yet. I haven't brought myself to watching it without Bella, but that was a big one. I don't know we haven't watched it yet. I haven't brought myself to watching it without Bella, but that was a big one and I think it still is. I think we just have to focus on, like you know, how much fun we all loved it and we can continue to, and we would also and Bella and Waylon both. That movie is number one, for Polar Express is up there for a way, waylon's watched Polar express four times in a row but even before then he was asking us to build the home alone, home with our lego I made a
Speaker 1:killer, one that one year with all the traps yeah, yeah, harry and marv were just like oh, destroyed. Yeah, that was a good one. I say we let waylon take the lead. Right, like no, I'm gonna force this. He doesn't get a say I'm not sitting through polar express forced for Josh, I'm not sitting through his terrible stuff uh, my favorite holiday tradition. I would say it doesn't have to be related to christmas, but for me my favorite is sledding oh, like tobogganing oh, yeah, yeah, yeah, it's bogging down.
Speaker 2:I love, love, love I love climbing up my favorite. No, you gotta pull them around on a skidoo or quad yeah or the quad yeah, I like that yeah, uh, let's go to the question about hiding the elves.
Speaker 1:Oh, this is so like I think, 50, 50 with the people. I know like some people are like hate it and they're like no way, I'm not starting it, absolutely not there's no way, it's 50, 50 don't let your kid tell my kid you have an elf, because I'm no way I'm getting an elf and all this stuff it's got to be 90 against 10 for you think I've heard so many moms are like absolutely not, I will never do that, no ways, no house, because they're just like they're seeing all of us, like other ones that do it like struggling, but I, I love it you'll have to do a poll on instagram I should.
Speaker 1:We should do a poll on instagram yay or nay elf on the shelf I okay, what's your bet?
Speaker 1:well, it's like I guess the age, like we have a six-year-old boy, and so it's like he like loves it, loves it, loves it, loves it, bella loves it, like I don't know but I think there's what do you mean? The age matter, that I mean it's been around for a really long time well, what if you have an older kid who like ruins it for the younger kid? And then it's just this, like fight they're gonna be in the 80 90 percent that don't like it.
Speaker 2:Yeah, I'm saying 90, 10 against and you want 50, 50 like yay or nay I was thinking 50, 50. Okay, you're saying 90, 10 we'll do the poll we'll do the poll on the 23rd with the podcast release oh, good idea.
Speaker 1:Okay, yeah, poll.
Speaker 2:Watch for that on my instagram at kyla ct yeah, or if you're listening on 23rd, the poll will be be on then.
Speaker 1:My Instagram yeah, a little interactive yeah. A little interactive Because we have a bet you think 90-10. I think 50-50 on Elf on the Shelf as a loved or hated Christmas tradition.
Speaker 2:And the winner has to drive to my sister's oh. Yeah, don't worry. Once you give up after an hour of driving, I'll take over Just one hour. Give me one hour. All right I love just listening, watching you just play on your phone and not talk to me for five hours of driving.
Speaker 1:With my earbuds in, so weird and I get to say I'm working, yes, I am as.
Speaker 2:I see you just like, throwing your finger across the screen, swiping up.
Speaker 1:I'm like, I am as I see you just like throwing your finger across the screen, swiping up, like oh yeah, like really busy, it's just tiktok, scrolling, tiktok, wormhole, and then a bust out like full-on, like lol, laughter out, loud laughter, whatever. That is okay. Okay, let's get to the question. Let's get to what people in my instagram think are yay and nay to Christmas traditions, love, gingerbread houses, not so much movies or games. Starting at 11pm, the late ones no, yeah, bedtime's early. I wouldn't want to start a movie or game at 11 either. Oh, not a movie. Oh, kirsten Boo Boo says we.
Speaker 2:Some of the best games start at 11. Let the games begin.
Speaker 1:I want to be in bed. That's why Kirsten Boo Boo says they eat steak on Christmas.
Speaker 2:Oh wait.
Speaker 1:Ooh, that would be. Yeah, I would be down for that tradition, for sure.
Speaker 2:Maybe Christmas. No, I'm a turkey guy.
Speaker 1:You're a turkey guy, yeah.
Speaker 2:Turkey just puts me to sleep. What doesn't put you to sleep?
Speaker 1:it's true, he just talked about going to bed at 11, uh, or needing to be in bed by 11 lindsey mac says, could do without the rushing to try to get everywhere to get everyone, but also want to see everyone. Yeah, yeah, I okay. So here's my thing with love and hate Christmas holiday season. It's not. It's not helpful for the be all and the end all to be the day of the 25th. When you have a diverse family or spread out family, make it about the time around the 25th sure the holiday season yeah don't.
Speaker 1:Don't stress family and friends out by making that day the be all in the end, all if it's the 20th or if it's the 28th or if it's the afternoon of the 23rd, that's okay, right, right, like yeah, that's a big stressor, right, yeah, try not to try not to do that. That's a want, want. Uh loves tegan, loves adults exchanging gifts just for the sake of gifts. Keep your money and just be a friend oh, she doesn't love doesn't love.
Speaker 1:She put a heart at the end. But yeah, I misheard that. Yeah, gifts just for the sake of gifts. Yeah, keep your money and just be friend. I had a great discussion with a friend in the dollar store the other day and she was telling me her plans is that where you got my gift dollars for your christmas shopping for me get? Some cans of alfaghetti or getting some stocking stuffers and some treats, some yummy treats and stuff, okay, okay. So, uh, we were talking about can't wait to open up that.
Speaker 2:Yes, don't knock the dollar store man.
Speaker 1:Okay, anyways, she was talking about how it's their, it's their christmas away right, like some people have. You know, they try and keep every other year we're home, the other year we're away, kind of thing, and so for their away year they're making it an experience christmas.
Speaker 1:So it's about the experience, it's about getting together, a family, water sledding, tobogganing, having fun water sliding zone awesome yeah, and not stressing for different family members and their families to come together and buy gifts for everyone and who gets what gift, and blah, blah, blah. No, it's like, go and do something. And I'm like, yeah, let's go to flippin mexico, let's just go and do something, not shop and get gifts or stress about the things.
Speaker 2:Those are fun too, though it can be, it can be.
Speaker 1:Don't stress about it, but I, if I had to pick second poll coming up, second poll, okay. Number one. Elf on the shelf, yarnay number two. Would you rather have a traditional christmas gift, christmas at home or peace out on a vacay?
Speaker 2:no, not just one off, one off. Of course you do that for the rest of your life every single Christmas still 100%. Give me a beach you would never want to have Christmas here again.
Speaker 1:I see everyone here every other day. What's one week out of the year right?
Speaker 2:am I right?
Speaker 1:I've always told you, my favorite Christmas is when we're in the Bahamas, we're going to have to take this offline.
Speaker 2:I don't think I need to say what my vote is.
Speaker 1:Oh, 100%, take me to the beach. I'll see you in March. I'll see you in March, you're going to lose like half your followers.
Speaker 2:You're a crazy guy.
Speaker 1:I'm going to lose followers.
Speaker 2:That's a hot. Take Everyone for the rest of you go get that, I don't care what you think really, though, the stress of like the stress of the hustle and the bustle and you went christmas shopping yesterday. You seemed just fine. This is no, I would. I'm saying this from a pretty like I'm also canadian on my perch tape like I. I wasn't the one out there doing it, so I probably do not get a say yeah that's true also.
Speaker 1:Thank you for that good, good self-awareness there. But yeah, I'll give me a beach. Give me a beach anytime, anywhere every year. I'm not sure what time we're at here. Let me go through a couple more from the from the gram. Uh, most love perry joe's mojo most. I most love having my parents.
Speaker 2:Oh, that is yes oh, oh, that's sweet that is really sweet send them a card while you go every year away that, yeah, they can you.
Speaker 1:they can you know there's FaceTime. Now we live in 2024. We can FaceTime. That's so special I love FaceTime. What, Okay, what?
Speaker 2:Can't wait to FaceTime you on Christmas Day from my bedroom.
Speaker 1:And I will FaceTime you from my beach. Thank you. Next, okay, this brought up. Something I wanted to mention, too, is keep in mind the ones that don't get these days off, and what comes to my mind is the kids in hospital and the healthcare workers and anyone else there that has a job that doesn't allow them to just take this day as a holiday. Sure, just keep them on your mind For all those people that are grumping about.
Speaker 2:Emergency.
Speaker 1:Yeah.
Speaker 2:Workers Emergency workers.
Speaker 1:Yeah, yeah.
Speaker 2:Road crews.
Speaker 1:Grumping about not being able to go to the beach for a week. Just think about the people that don't even get to leave their job.
Speaker 2:And go see their family and go see their family, right, exactly.
Speaker 1:You know, speaking of that, that like we had some of our best christmases ever when we were in hospital yeah, we had a lot of christmases in the hospital and they were great.
Speaker 2:And you know who made them great? Who?
Speaker 1:ron mcdonald house and hospital and the hospital yeah but like those two combined, like we're living in the ron mcdonald house and back and forth in the hospital with bella you're absolutely right they made them amazing and special and uh, yeah, yeah I think that kind of wraps things up for today.
Speaker 2:I think so too yeah, I want to make sure to wish everyone a merry christmas and to drive safe, uh yes, please drive safe.
Speaker 1:Pack the shovel, maybe not the cat litter we'll get to the bottom of that the candle. Uh, extra clothes just stay safe, um, when you're traveling to see your loved ones and um, or making it to your beach vacation.
Speaker 2:Share the run yeah, give everyone a big hug yeah, merry christmas, we love you guys. Thank you for listening, thank you for being here and please and always there's a lot of other holidays going on the christmas stay brave, whatever you're celebrating during the holidays I. I ruined your segues, you ruined my outro I just thought there's lots of people that don't celebrate christmas oh yeah, that's right.
Speaker 1:Oh, my goodness, throwing that in there last minute. What are all the different christmases holidays? Hanukkah kwanzaa kwanzaa oh, look at you, yeah, uh that's all we got.
Speaker 2:Yeah, maybe not a great poll on instagram no, not a great poll.
Speaker 1:We're probably just to google these things. We should google a little bit more, maybe. Hey, yeah, outro stay tuned, we'll be.
Speaker 2:We won't miss a day, so we'll be on every monday, right?
Speaker 1:every monday we record a couple before beyond brave on all major streaming platforms, and if you want to follow our day-to-day reminisce through older content, please visit me and stop by my instagram and my tiktok, which is at kyla ct. Bella on Facebook, and I'd like to end with what Bella would say God is love. Stay brave and you're never too old to bring a stuffy Promise. We'll never be stressed, ever again.
